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ALS moves brutally fast and takes a pile of doctor visits just to diagnose. Everything has to be done right, the first time. This is the story of how usage redesigned our patient portal: three stages, told in wireframes.
The original bet: not telehealth. Help patients aggregate their medical records, get into trials, and keep everything in one place. Four pillars.
Aggregate every visit in one place: care coordinator calls, outside doctors, blood draws, past history.
Patients upload their records; we assemble and organize them so nothing gets lost between systems.
The whole circle: caregivers, neurologists, primary care, so we know who’s involved.
Guides for living with ALS. Useful, but tertiary.
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Interactive — click through the nav.
We added messaging to the portal: message your care coordinator or doctor, share documents, get notified when they replied. Then we lived with the product for a couple of years. Messages and booking doctor appointments turned out to be the #1 and #2 things people actually did.
Upcoming appointments
+ Add appointmentUpload records
Care team & contacts
Guides
Interactive — click through the nav. Message your coordinator or doctor, share documents, get notified.
By then the company had pivoted to telehealth: real neurology specialists working alongside a patient’s own doctors, and ALS grew into neurodegenerative care broadly. Usage had already picked the priorities: messages first, scheduling second. The redesign made them the structure.